INTRODUCTION

Health-related quality of life (HRQL) indicators are important in the assessment of people with disabilities because they incorporate their own perspective. The CP QOL (Cerebral Palsy Quality of Life) is an Australian questionnaire that measures HRQL in children and adolescents with cerebral palsy by self-administration or through proxies. The objective of this study was to obtain a culturally adequate version of the CP QOL-PCQ (Primary Caregiver Questionnaire) for the Argentine population, practical and semantically equivalent to the original version.

METHODS

A cross-cultural adaptation was conducted, including translation and back translation by professional linguists, control of equivalence by experts and authors, and comprehension tests through cognitive interviews with a sample of caregivers. Adequacy, equivalence, and comprehension were verified in the expert's speeches and interviews responses.

RESULTS

Ninety-five items were translated and 19 were modified during the review and consensus with experts and authors. In cognitive interviews, comprehension difficulty and cultural equivalence were detected and 6 items were modified.

DISCUSSION

Culturally appropriate versions of the CP QOL-PCQ are available for the Argentine child and adolescent population, with evidence of their understanding in the target population. Metric properties and final conformation will be evaluated in the near future.

        · resumen en Español     · texto en Español     · Español ( pdf )